267: A Tuberous Sclerosis Complex Diagnosis and Finding Strength in Vulnerability- Erin’s Story

267: A Tuberous Sclerosis Complex Diagnosis and Finding Strength in Vulnerability- Erin’s Story

Podcast Show Notes

When Erin Trier’s son Brendan began having seizures just before his second birthday, she had no idea it would take over eight years to receive a definitive diagnosis: Tuberous Sclerosis Complex (TSC). 

In this heartfelt conversation, Erin, a mom of four and women’s health coach, opens up about the long road to answers, the coping strategies she’s learned, and the ways vulnerability has deepened her relationships. From the day-to-day realities of raising a medically complex child to the importance of carving out “white space” in a busy family schedule, Erin shares practical wisdom and emotional truths that every parent can take to heart.

   What You’ll Hear

  • The eight-year journey from Brendan’s first seizures to his TSC diagnosis

     

  • How Erin copes with the mental and emotional weight of parenting a medically complex child
  • Practical organization strategies (including her family’s game-changing laundry system)
  • The power of vulnerability in building authentic support networks
  • How Erin’s work as a women’s health coach intersects with her personal journey

     Resources Mentioned

  • Erin’s Website – Coaching, resources, and free energy optimization guide
  • Erin on Instagram – Daily inspiration and health tips
  • Empowered in Health Podcast – Conversations on wellness and vitality

     

    Special Thank You to Our Listeners

    We’re giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you’ll get instant access to both courses — no strings attached. It’s our way of saying thank you for listening and helping more parents discover our show. 💛

    Keywords: Tuberous Sclerosis Complex, TSC diagnosis story, rare genetic disorder, seizure disorder, epilepsy in children, autism parenting, medically complex child, women’s health coach, parenting tips, self-care for parents, family organization, SupportSpot app, parent mental health, coping strategies, special needs parenting, rare disease awareness.

    The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.

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