On this week's episode, Shani Thornton, CCLS, from Child Life Mommy shares how to support children in hospice. Shani wears many different hats in the Child Life world including supporting children in the hospice setting .Shani shares how to connect with children...
Episode 123 | Laura’s Story Part 1: A son with Congenital Leukemia
Podcast Show Notes
Friends, you are not going to want to miss this episode! On today’s episode of the podcast,we hear about Laura’s Birth story and the beginning of her son Trey’s journey with congenital Leukemia. Laura shares the raw emotion and grief when she and her husband learn of Trey’s diagnosis. She goes intimately into detail about her first time seeing her newborn son, how it broke her to her core and how she began to pick up the pieces. Laura shares how her friends rallied behind her during this extremely challenging time and how we can support others going through a crisis. There is a part 2 to Laura’s story, sharing all about life during and after an extended stay in the hospital.
[4:10] How they chose Trey’s name
[5:20] Unexpected diagnosis
[9:25] Emergency C-Section
[10:48] Pep Talk with Mom
[15:59] Neonatologist gives them difficult news
[19:40] Laura describes that ‘tsunami’ feeling of their world crashing down around them
[22:24] Meeting the transport nurse who helped transport her son
[27:12] Meeting Trey at CHOP for the first time
[31:10] Processing the events
[33:58]Reality of the diagnosis sinking in
[35:15] the Importance of taking care of yourself
[39:00] How to help in times of need
[42:19] How Laura’s friends and family supported her every step of the way
If you would like to connect with Laura, please reach out to Child Life On Call
Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here.
Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here.
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