“It wasn't any kind of strength within myself that helped me get through the NICU. It was the strength they had—they gave it to me.”- Savannah O'Malley We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more...
Episode 132 | Tanisha’s Story- A son with LUTO (lower urinary tract obstruction)
Podcast Show Notes
Tanisha tells a story of strength and perseverance as her son Jaleel was born with a lower urinary tract obstruction. This story highlights the powerful ways Tanisha and her husband, Quentin work together as a team for Jaleel and their family. From her experiences in the NICU and beyond, Tanisha created a community to support NICU Medical Moms.
[3:52] The journey to motherhood for Tanisha
[6:13] Learning that Jaleel had a lower urinary tract obstruction at her 20 week anatomy scan
[9:30] How Tanisha’s husband helped her feel included in Jaleel’s care
[14:16] Healing is on-going for Tanisha and her family
[18:39] She describes how she had the urge to walk one evening and the next morning learned she was in labor
[20:35] Jaleel was born and was immediately rushed to the NICU for respiratory issues
[22:57] Tanisha explains the emotional reunion in the NICU
[24:51] Her husband advocated for Tanisha become involved in Jaleel’s care to connect with him
[26:49] Tanisha shares how she went into learning mode to not be stressed
[28:42] Child Life specialists put up pictures of Jaleel’s progress in the NICU and decorated his room the theme of his nursery
[31:33] Getting a G-Tube was key to getting Jaleel ready for transplant
[33:30] Moral support from Mom to Mom was key for Tanisha
[37:43] Tanisha shares how she was enrolled in her Master’s Degree program and how she was supported by faculty
[42:00] Tanisha shares how she feels she is getting to live her dream in a new way
[45:24] How Child Life Specialists shaped Jaleel’s interest in music
Connect with Tanisha:
Medical Moms of NICU Facebook Group
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When you download our starter kit, you’ll learn how to:
- Give medicine to your child without it becoming a wrestling match
- Prepare your child (and yourself) for a shot so they can feel less anxious
- Create and use a coping plan for any medical appointment or procedure
The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
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