April is Child Abuse Prevention Awareness Month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today’s guest expert is Jane Donovan, who is a child abuse prevention advocate. "And like we say in...
Episode 137 | A son with Aicardi-Goutieres Syndrome (AGS)
Podcast Show Notes
On today’s episode of the podcast we hear from Lauren about her son’s diagnosis of Aicardi-Goutieres Syndrome (AGS.) She shares how her uneventful pregnancy followed by a NICU stay and numerous hospital visits with unanswered questions eventually resulted in a diagnosis. Lauren shares how coaching changed her life and how she is now a life coach for mothers of children with disabilities.
[4:32] How ranch living was a dream come true
[5:20] After an uneventful pregnancy, Lauren gives birth
[7:00] A nurse tells Lauren to get a second opinion
[9:15] Lauren and Katie chat about the NICU life
[11:00] How staying at the hospital added to the emotional and stressful times
[12:25] Asking about Lauren’s pregnancy history
[14:00] An MRI reveals some answers
[16:50] Living in flight or fight mode
[19:50] Leo stopped eating and had a swallow study
[21:00] The doctors grasp for answers
[26:30] Genetics appointment results
[27:30] How diagnosis day holds trauma
[29:11] Finding a specialist who has experience working with children who have AGS
[31:20] How Lauren found healing through coaching
[35:28] Lauren shares Leo’s love language
[37:24] Self care is what works for your stress management
[39:22] What is driving your action and feelings?
[42:27] Our definitions of being a good mom
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