Discover how Child Life Specialists play a pivotal role in transforming the care experience for children with kidney disease and providing essential support to their families. "As a child life specialist, watching my tiniest patients grow and accomplish so many things...
Episode 168 | Olivier’s Story – A Film Inspired by A son with Down Syndrome
Podcast Show Notes
Today we have another Dad on the podcast. Katie interviews Oliver Bernier, father of Emilio and filmmaker, about his son’s unexpected diagnosis of down syndrome. You will learn what inspired Oliver to create a film to educate and empower parents of children with Down syndrome how to navigate the school system and be the best advocate for their child. Oliver’s passion to educate parents about the importance of inclusivity will shine through as he shares an inspiring message.
[3:45] Introductions
[5:10] Forever connection to New York
[6:22] Filming the moments
[7:12] Misconceptions about Down syndrome
[9:28] Giving Emilio the world
[10:22] Building the bridge to understanding living with disabilities
[12:17] An atmosphere of acceptance
[15:01] Putting a dent the world to raise awareness
[17:20] Sharing other families stories on the film, giving him hope
[19:28] Living in the moment
[21:34] Universal design for learning
[23:18] Empathy taught by practice
[24:53] All parents advocating to be in classes with differently abled child
[26:45] NICU is a mirror of an inclusive classroom
Connect with Oliver
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- Give medicine to your child without it becoming a wrestling match
- Prepare your child (and yourself) for a shot so they can feel less anxious
- Create and use a coping plan for any medical appointment or procedure
The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
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