What if every milestone your child was supposed to reach came with countless curve balls? For Alexis Kaplan, motherhood quickly turned into a journey of advocacy, strength, and unwavering love as she navigated her daughter Gabby’s complex and rare health conditions....
Episode 168 | Olivier’s Story – A Film Inspired by A son with Down Syndrome
Podcast Show Notes
Today we have another Dad on the podcast. Katie interviews Oliver Bernier, father of Emilio and filmmaker, about his son’s unexpected diagnosis of down syndrome. You will learn what inspired Oliver to create a film to educate and empower parents of children with Down syndrome how to navigate the school system and be the best advocate for their child. Oliver’s passion to educate parents about the importance of inclusivity will shine through as he shares an inspiring message.
[3:45] Introductions
[5:10] Forever connection to New York
[6:22] Filming the moments
[7:12] Misconceptions about Down syndrome
[9:28] Giving Emilio the world
[10:22] Building the bridge to understanding living with disabilities
[12:17] An atmosphere of acceptance
[15:01] Putting a dent the world to raise awareness
[17:20] Sharing other families stories on the film, giving him hope
[19:28] Living in the moment
[21:34] Universal design for learning
[23:18] Empathy taught by practice
[24:53] All parents advocating to be in classes with differently abled child
[26:45] NICU is a mirror of an inclusive classroom
Connect with Oliver
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.
Parents, download our free parent starter kit.
When you download our starter kit, you’ll learn how to:
- Give medicine to your child without it becoming a wrestling match
- Prepare your child (and yourself) for a shot so they can feel less anxious
- Create and use a coping plan for any medical appointment or procedure
The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.
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