Breast cancer survivor, Sara Olsher, battles the disease as a single parent, using her experience to empower others and create resources for families facing cancer, in a moving and inspiring episode of the Child Life On Call podcast. I am my daughter's person...my...
Episode 172 | Rylee’s Story – A child life specialist with Tetralogy of Fallot
Podcast Show Notes
On today’s episode of the podcast, Katie interviews Rylee Neal who decided to become a Child Life Specialist from her past experiences being hospitalized with a heart condition called tetralogy of fallot. An experience with a Child Life Specialist during one of her hospital stays lead her to pursue the field of Child Life. Katie and Rylee have some great conversation about scars, our feelings and how as Child Life Specialists or parents we constantly are looking to better ourselves. You will leave this episode with a heartfelt perspective from Rylee as she shares pieces of her journey as patient and clinician.
[3:23] Rylee introduces herself
[4:41] First memory of her diagnosis
[5:45] Realizing her diagnosis was serious at age 13
[6:45] Aversion to medical care
[8:01] Reading consent forms at a young age
[10:00] How preparing ahead would have helped Rylee
[12:07] Wanting to know more the Child Life Specialist who helped her
[14:30] How she fell in love with the Child Life field
[16:50] How her parents get sappy hearing about her work
[19:00] Rylee shares about her scars
[21:18] Kids say what they feel
[22:26] Being able to relate with the children
[24:07] Not letting worse case scenarios creep into personal thoughts
[26:33] Feeling your feelings and decompressing
[28:42] Continual betterment
[30:35] Creating a virtual diversion wall
[33:01] Getting patients out of bed
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.
Parents, download our free parent starter kit.
When you download our starter kit, you’ll learn how to:
- Give medicine to your child without it becoming a wrestling match
- Prepare your child (and yourself) for a shot so they can feel less anxious
- Create and use a coping plan for any medical appointment or procedure
The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.
You Might Also Like…
Meet Ryan Sheedy, an incredible father who, much to his own surprise, found himself immersed in the delightful chaos of caring for twin boys. His world drastically transformed ten years ago, when he moved from Pennsylvania to Bentonville, Arkansas. Not only has Ryan...
Does this sound familiar? Are you a parent of a disabled child, feeling overwhelmed and isolated? Maybe you've been told to simply toughen up and handle it on your own. But that advice only deepens the pain of loneliness and frustration. It's time to break free from...