We’d like to extend our sincere thanks to our episode sponsor, reStickity®. Their innovative, mess-free reusable sticker sets allow families to personalize hospital spaces with familiar photos and comforting images, helping bring a sense of home to the hospital. To...
Episode 62 | Madeline’s Story – The sibling of a child with a rare genetic condition
Podcast Show Notes
“It’s been rough. It’s like your heart is in two different places.”
Katie, Certified Child Life Specialist interviews Madeline, a mom from Utah that shares her son’s experience with having a rare form of skeletal dysplasia and how her daughter has dealt with their journey.
Madeline is host of The Rare Life podcast which was inspired by her son, Kimball after his arrival into the world. In this episode, Madeline walks us through what it’s been like for her daughter.
Madeline is a fierce, inspiring and talented human who has an ability to connect with other parents and professionals. She reminds others often that “your feelings are valid, and you shouldn’t feel shame about them.”
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