In this episode of Child Life On Call, host Katie Taylor, a certified child life specialist, shares personal experiences and practical advice on maintaining calm during your child's medical procedures. Katie recounts a traumatic incident with her daughter, emphasizing...
Episode 74 | Jessica’s Story – A son with Prader-Willi syndrome
Podcast Show Notes
Katie, Certified Child Life Specialist talks with Jessica Patay, Founder and Executive Director of We Are Brave Together.
Her own story as a mom of a child with special needs began in 2003 when her second son, Ryan, was born and diagnosed with a rare, genetic disorder, called Prader-Willi syndrome. Within two days of receiving this diagnosis, she received a phone call from a mentor mom from the Prader-Willi California Foundation. Immediately she felt relief and comfort knowing she was NOT ALONE.
In this episode, we talk about:
- How hearing from medical staff, “I’ve never heard of this before” is NOT helpful
- What Jessica wished she would have known 18 years ago about where she is today
- How community has shaped her ability to cope and thrive
Learn more about Jessica’s organization and make sure to follow her on Instagram and Facebook.
Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here.
Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here.
Child Life On Call | Instagram | Facebook | Twitter
You Might Also Like…
239: Finding Grants Brought Hope – Abby’s Story: A son’s near drowning accident
We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. In this powerful first episode of the year, Katie sits down...
238: Parents: How to Make the Most out of Rounds in the Hospital
Medical rounds can feel daunting for parents—packed with medical jargon, swift decisions, and limited time for questions. In this episode, Katie Taylor, Certified Child Life Specialist and founder of Child Life On Call, breaks down everything parents need to know...
