Today’s guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks." In today's episode Katie Taylor had the chance to speak with Erin Prosser, an...
Episode 2 | Michelle’s Story – A life-threatening illness leads to a week-long coma
Podcast Show Notes
Michelle’s story is one that took place over 15 years ago, and this is the first time she has spoken about it publicly. At the age of two, Brynn started developing inexplicable fevers which concerned her mother, an Emergency Room nurse. After trusting her gut that “something was wrong,” Michelle brought her daughter in the middle of the night to the ER and shortly after was diagnosed with meningoencephalitis and in a coma for over a week.
Michelle brings a unique perspective on relationships with healthcare providers, given the fact that she is and has been a nurse for over 18 years. You’ll hear her talk about the benefits of building a trusting relationship with your child’s pediatrician. She gives great advice about how to find that specific provider, and also talks about the importance of following your parental instincts.
If you would like to connect with Michelle, you can do so here, Michelle on Facebook or through her email, mlbrahaney@gmail.com.
Please subscribe to the Child Life On Call Podcast and leave a review on iTunes. If you would like to share your story or have questions about this podcast, you can email info@childlifepodcast.com or submit your information via the website childlifepodcast.com.
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