Today’s guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks." In today's episode Katie Taylor had the chance to speak with Erin Prosser, an...
Episode 33 | Scott’s Story – A daughter with a rare cancerous tumor
Podcast Show Notes
This episode is not a cancer story. This is a story about a loving family, a precious child, and how to find miracles during the darkest parts of life. In this episode, Katie interviews Scott Kramer, father to Maddie. Maddie was diagnosed with atypical teratoid rhabdoid tumor (AT/RT) at just two and a half years old and sadly passed away after 8 months of treatment. However, Maddie’s story is far from over. Scott and his wife are founders of Dancing While Cancering, a nonprofit that shares joy by delivering SmilePacks to children facing cancer. Support Dancing While Cancering and read more about Maddie’s story through Maddie’s Miracles and the The Miracles That Follow.
Follow Maddie’s story and Dancing While Cancering on Instagram, Facebook, and Twitter.
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