Today’s guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks." In today's episode Katie Taylor had the chance to speak with Erin Prosser, an...
Episode 11 | Susan’s story – A son with Crohn’s disease
Podcast Show Notes
Discover the touching story of a young boy’s encounter with Crohn’s disease and how his family, led by his mother Susan, navigated this challenging journey. At just six years old, Preston started experiencing severe belly pain, a symptom that led them to a Pediatric Gastroenterologist and a subsequent diagnosis of Crohn’s disease. In this powerful episode, Susan shares the intricacies of Preston’s medical procedures and treatments, offering an intimate glimpse into the realities of managing pediatric Crohn’s disease.
Highlighting her family’s resilience, Susan talks openly about the strategies they’ve employed to cope with this chronic illness. From relying on their son’s healthcare team to finding strength in each other and their faith, Susan’s story is one of hope and determination.
For those looking to connect with Susan and follow her journey, she is active on Instagram and Facebook. She also recommends visiting the Crohn’s section on kidshealth.org for comprehensive information and emphasizes the importance of understanding your child’s medication to feel more in control and empowered.
If you’re a parent with a similar story and want to share your experiences, Child Life On Call welcomes you to reach out. Contact us through Twitter, Facebook, Instagram, or submit your story on childlifepodcast.com. You can also email us at info@childlifepodcast.com.
Tune in to this episode for an inspiring look at managing pediatric Crohn’s disease and the power of a supportive family and community.
If you would like to share your story, you can message Child Life On Call’s Twitter, Facebook or Instagram or submit your information on childlifepodcast.com or email info@childlifepodcast.com
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