What if every milestone your child was supposed to reach came with countless curve balls? For Alexis Kaplan, motherhood quickly turned into a journey of advocacy, strength, and unwavering love as she navigated her daughter Gabby’s complex and rare health conditions....
Episode 11 | Susan’s story – A son with Crohn’s disease
Podcast Show Notes
Discover the touching story of a young boy’s encounter with Crohn’s disease and how his family, led by his mother Susan, navigated this challenging journey. At just six years old, Preston started experiencing severe belly pain, a symptom that led them to a Pediatric Gastroenterologist and a subsequent diagnosis of Crohn’s disease. In this powerful episode, Susan shares the intricacies of Preston’s medical procedures and treatments, offering an intimate glimpse into the realities of managing pediatric Crohn’s disease.
Highlighting her family’s resilience, Susan talks openly about the strategies they’ve employed to cope with this chronic illness. From relying on their son’s healthcare team to finding strength in each other and their faith, Susan’s story is one of hope and determination.
For those looking to connect with Susan and follow her journey, she is active on Instagram and Facebook. She also recommends visiting the Crohn’s section on kidshealth.org for comprehensive information and emphasizes the importance of understanding your child’s medication to feel more in control and empowered.
If you’re a parent with a similar story and want to share your experiences, Child Life On Call welcomes you to reach out. Contact us through Twitter, Facebook, Instagram, or submit your story on childlifepodcast.com. You can also email us at info@childlifepodcast.com.
Tune in to this episode for an inspiring look at managing pediatric Crohn’s disease and the power of a supportive family and community.
If you would like to share your story, you can message Child Life On Call’s Twitter, Facebook or Instagram or submit your information on childlifepodcast.com or email info@childlifepodcast.com
You Might Also Like…
249:How to Talk With Children About Child Abuse [REPOST]- Jane’s Story
Knowing how to talk to kids about child abuse can feel overwhelming—but it doesn’t have to be. In this impactful episode of Child Life On Call, host Katie Taylor interviews child abuse prevention advocate Jane Donovan—who also happens to be her mom. Jane shares her...
248: MERRF Syndrome and Motherhood: Raising and Remembering Dahlia-Jessica’s Story
"We followed Dahlia’s lead—and Dahlia was not going to let this stop her.” — Jessica Fein What happens when your child’s diagnosis is so rare that no one—including your doctors—knows how to help? For Jessica Fein, navigating life with her daughter Dahlia’s MERRF...