"Life is always in the mix of joy and grief, and those things coexist. But this is how I’m going to deal with it." - Joanne De Simone In this episode of the Child Life On Call Podcast, Joanne De Simone shares her journey as a parent raising two sons with...
Episode 3 | Kim’s Story – A son born with Microtia Atresia and hearing loss
Podcast Show Notes
In this episode you will hear Kim talk about her experience in finding out that her son had Microtia Atresia, the interesting link to their family history and how that has affected her journey, and the tough decision about how and when to move forward with surgery.
Microtia is a congenital deformity where the external ear is underdeveloped, and Atresia is the absence or closure of the external auditory ear canal. The malformation of the middle ear bones may be affected including the narrowing of the ear canal. This is a birth deformity that occurs in about 5,000 to 7,000 births.
Kim recommends the following resources:
If you’d like to connect with Kim, you can do so through her blog, The Hill Country Woman, through social media sites Facebook and Instagram, and she also blogs for Austin Moms Blog.
A big thank you to the incredible photographer, Laura Morsman Photography for her beautiful pictures of Kim and her family for this episode. If you live in Austin… book Laura Morsman Photgraphy NOW.
Take a look at the world’s first swaddle for hospitalized infants, Woombie Med Pods, from Barski Vail Designs.
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