Today’s guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks." In today's episode Katie Taylor had the chance to speak with Erin Prosser, an...
Episode 37 | Meg’s Story – A daughter with Idiopathic Thrombocytopenic Purpura (ITP)
Podcast Show Notes
Katie, Certified Child Life Specialist, talks with Meg Casano, mother to Ella who has Idiopathic Thrombocytopenic Purpura (ITP) and also created the nonprofit Medi Teddy which is a stuffed animal cover for intravenous medications.
Meg talks about the journey to discover her daughter’s diagnosis and how an initial prediction that Ella’s ITP would only last six months but has turned out to be a life-long chronic illness. She discusses the financial and emotional challenges that exist when you have a child with a chronic illness, but she also talks about how a school project and a driven child can turn into a fully functioning nonprofit that helps other kids like Ella.
Connect with Meg and Ella on Instagram or at www.Medi-Teddy.org
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