In this week’s incredibly honest and profound episode, we sit down with Jeff Loving, a husband, proud NICU dad, and the author of Holding Onto the Light: A Father’s Journey Through Loss and Healing. Jeff shares the deeply personal, often unspoken, side of grief: the...
Episode 37 | Meg’s Story – A daughter with Idiopathic Thrombocytopenic Purpura (ITP)
Podcast Show Notes
Katie, Certified Child Life Specialist, talks with Meg Casano, mother to Ella who has Idiopathic Thrombocytopenic Purpura (ITP) and also created the nonprofit Medi Teddy which is a stuffed animal cover for intravenous medications.
Meg talks about the journey to discover her daughter’s diagnosis and how an initial prediction that Ella’s ITP would only last six months but has turned out to be a life-long chronic illness. She discusses the financial and emotional challenges that exist when you have a child with a chronic illness, but she also talks about how a school project and a driven child can turn into a fully functioning nonprofit that helps other kids like Ella.
Connect with Meg and Ella on Instagram or at www.Medi-Teddy.org
Child Life On Call | Instagram | Facebook | Twitter
You Might Also Like…
Understanding Homocystinuria (HCU): How a mother uncovered her son’s diagnosis- Melanie’s Story
As parents, we rely on routine tests to tell us our children are healthy. For Melanie and her husband, Ryan, in Vancouver, British Columbia, it took a routine eye doctor's appointment to uncover a startling truth about their 12-year-old son, Masen, an energetic hockey...
Autism, Advocacy and the Power of a Medical ID: Tara’s Story
“You don’t have good days and bad days — you have good moments and tough moments. And if you only count the bad ones, you’ll miss all the silver linings.”- Tara Cohen In this deeply moving and empowering conversation, Tara Cohen, Executive Vice President at Lauren’s...
