“It wasn't any kind of strength within myself that helped me get through the NICU. It was the strength they had—they gave it to me.”- Savannah O'Malley We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more...
Episode 53 | Teresa’s Story – A daugther with Spina Bifida and Tethered Cord
Podcast Show Notes
Katie, Certified Child Life Specialist interviews Teresa, a mom of a teenage daughter with Spina Bifida.
With no signs of abnormalities during her pregnancy, Teresa was shocked to learn that a fatty lump on her daughter’s skin at the base of her spine would lead to a diagnosis of spina bifida occult with a tethered spinal cord.
Teresa walks us through the shock of the diagnosis and the power that a one-on-one discussion with an empathetic doctor had on their ability to cope.
Motivated by their story to help kids like her daughter be able to disguise some of the necessary medical equipment she must wear every day, they created www.hiddenunderwear.com
Follow along with Teresa on Instagram and Facebook.
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