“It wasn't any kind of strength within myself that helped me get through the NICU. It was the strength they had—they gave it to me.”- Savannah O'Malley We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more...
Episode 60 | Dafne’s Story – Children with Chronic Illness: Juvenile Type 1 Diabetes, Psoriatic Arthritis and Ankylosing Spondylitis
Podcast Show Notes
Katie, Certified Child Life Specialist interviews Dafne, The Chronic Illness Coach.
Dafne is mom to three college-age kids and she and her husband live in Houston, Texas. In this episode, we talk about how her children all suffer from chronic illness: Juvenile Type 1 Diabetes, Juvenile Psoriatic Arthritis and Juvenile Ankylosing Spondylitis.
She describes how:
*Finding a medical team who includes you as the parent is important
*Searching for a tribe of people who understand is worth the effort
*Small children who deal with lifelong chronic illness can thrive
You can follow Dafne on Instagram, Facebook and buy her book.
Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here.
You Might Also Like…
246: Pyroxd1 and the Path Forward: A Rare Disease, a Life-Saving Lesson & a Mission to Help Others- Maria + Matt’s Story
"What we realized was that rare isn’t as rare as we think—there are so many of us out here searching for answers, fighting for our kids, and trying to make a difference."- Maria Granados We extend our sincere gratitude to our sponsor for this episode, Gebauer...
245:Navigating HIE: Hope for Families, and Life Beyond the NICU [REPOST]- Betsy’s Story
"I remember sitting in the NICU thinking, ‘Am I going to lose my baby? Is this the best outcome for him? What will his life look like?’ And then I realized—I wasn’t alone in these thoughts. Other parents had been here before, and they found a way forward. That’s when...