In this episode of Child Life On Call, host Katie Taylor, a certified child life specialist, shares personal experiences and practical advice on maintaining calm during your child's medical procedures. Katie recounts a traumatic incident with her daughter, emphasizing...
Jade Marie’s Story – A daughter with hypoplastic left heart syndrome
Podcast Show Notes
It’s a moment that many parents on this podcast have talked about. Your at your ultrasound, pregnant with your child, and all of a sudden the mood of the room changes. Either the technician leaves, or a doctor walks in to “take a closer look” … a million questions and thoughts and fears run through your mind.
In today’s episode, you will get to hear from Jade Marie from Portsmouth England. At 16 years old and after being told she could never have children, Jade Marie was shocked to learn that she was 16 weeks pregnant. At at an emergency ultrasound less than 24 hours later, she learned that the baby inside of her had one of the most severe heart defects – she was missing the entire left side of heart.
In this epsidoe, we will hear Jade Marie describe what the journey with her daughter, Dawn Louise, has been like and what it is like to have a child with hypoplastic left heart syndrome.
Instagram: @DawnLouise_HLHS
Facebook: Dawn-Louise HLHS Blog
YouTube: Archer Adventures
UK HLHS Support: Little Heart Families
Listen to and read about more stories from parents of children with an illness or medical condition here:
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