On today's episode of the podcast, Katie interviews Rylee Neal who decided to become a Child Life Specialist from her past experiences being hospitalized with a heart condition called tetralogy of fallot. An experience with a Child Life Specialist during one of her...
Episode 151 – Gavin + Cindy’s Story – A son with Osteosarcoma
Podcast Show Notes
Cindy and Gavin share about their son Ryan and his battle with Osteosarcoma. Cindy shares about how she created a Case for Smiles to help her cope with Ryan’s diagnosis. Gavin brings the perspective of dad and professional and shares how he started a new position at the Hospital his son was being treated at the very same day as a diagnosis. They openly share the ups and downs of their journey and how Ryan’s legacy lives on today.
[3:16] Introducing their family
[5;34] A bike accident lead to the shocking diagnosis
[6:26] Going into remission
[7:00] Gavin begins a new job as a CFO the same day they got the Osteosarcoma diagnosis
[8:30] Diagnosis day
[9:30] Bedside Manner of Pediatrician
[10:26] Balance between hospital and home
[13:32] Being open with Ryan during his treatment
[15:38] Ryan learned how to golf during his treatment period
[18:03] Cindy shares about how she made a pillowcase for Ryan to make each stay more comfortable
[19:50] Finding out Ryan was terminal
[21:30] Case of Smiles being formed after a Martha Stewart Contest entry
[23:00] Coping with the new reality and loss
[25:20] Using Ryan’s experience to help cope with a cancer diagnosis
[28:40] Finding your advocate voice
[30:00] The joy in Ryan’s pranks
[32:32] Learning the ropes quickly
[33:05] Evolution of care
[35:15] Smiling and laugh through the hard times
[39:02] Just Sibs Program
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