When Camryn noticed a sudden personality shift and debilitating anxiety in her fearless, fun-loving daughter, she trusted her gut—even when early providers said “she’s fine.” In this powerful episode, Camryn shares how persistent advocacy led to a diagnosis of...
In this heartfelt episode of Child Life On Call, Courtney Morey shares her journey as a mom navigating her daughter Annie’s diagnoses of Trisomy 21 (Down syndrome), a ventricular septal defect (VSD), and pulmonary hypertension. From the shock of receiving unexpected...
When Erin Trier’s son Brendan began having seizures just before his second birthday, she had no idea it would take over eight years to receive a definitive diagnosis: Tuberous Sclerosis Complex (TSC). In this heartfelt conversation, Erin, a mom of four and women’s...
When Victoria Garcia learned midway through her pregnancy that her daughter Julia would be born with Achondroplasia, her world shifted—but her purpose became clearer than ever. As a neonatal nurse and mother of two, Victoria brings a unique blend of personal and...
This is a special repost of one of our most heartfelt and insightful episodes. Whether this is your first time hearing Jessica’s story or a revisit, her perspective as a mom of a child with Prader-Willi Syndrome will stick with you. What happens when a diagnosis...
Being close to a trusted adult is powerful. It lessens pain and brings comfort when kids need it most. This guide shows you how to keep kids safe, and help them feel supported, during medical procedures. From the Meg Foundation for Pain and Child Life On Call.
![268: A Daughter with Down Syndrome, AVSD and Pulmonary Hypertension [REPOST]- Courtney’s Story](https://childlifeoncall.com/wp-content/uploads/2025/08/unnamed-1080x675.jpg)
![253: Prader-Willi Syndrome, Motherhood & Finding Community Through Advocacy [REPOST]- Jessica’s Story](https://childlifeoncall.com/wp-content/uploads/2025/05/ThePatayFamily-2021-5-We-Are-Brave-Together-1080x675.jpg)
