“We are the experts on our daughter and we deserve a say, and we deserve to be given the time to ask questions.” – Nikki DeLeo We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information...
Meeting Jan Stepps feels like catching up with a long-lost friend. Her warm demeanor and indomitable spirit immediately set the stage for impactful and reassuring conversations. A proud mother of two, Jan, is a resilient family figure who navigated an evocative...
On today’s episode of the podcast, Katie interviews Courtney Morey, Mother to Annie who was diagnosed with Trisomy 21, AVSD and Pulmonary Hypertension. Katie and Courtney have such great dialogue and raw conversation in this episode. Courtney shares the positive...
Travis shares how they discovered his daughter’s cystic fibrosis diagnosis at age 4. Just months earlier, Travis learned his half sister was diagnosed with Cystic Fibrosis. He shares how the journey impacted his life on a professional and personal level...
On today’s episode of the podcast we hear from Lauren about her son’s diagnosis of Aicardi-Goutieres Syndrome (AGS.) She shares how her uneventful pregnancy followed by a NICU stay and numerous hospital visits with unanswered questions eventually resulted...
Being close to a trusted adult is powerful. It lessens pain and brings comfort when kids need it most. This guide shows you how to keep kids safe, and help them feel supported, during medical procedures. From the Meg Foundation for Pain and Child Life On Call.
